Biomedical Research
Science has the potential to make extraordinary leaps when the right people, ideas, and technology come together to solve complex problems.
We’re disrupting the traditional research space by re-imagining how science is done and funded, with a focus on supporting both projects and people. Through thoughtful and nimble investments of time and resources into the most pressing scientific questions, we develop tailored solutions and encourage bold, relentless scientific exploration toward our goals.
Single Ventricle Heart Disease
Our biomedical research work focuses on a rare form of congenital heart defects called single ventricle heart disease. While this field is in its infancy, with limited knowledge of cause, risk, outcomes, or treatments, we are confident that through coordinated strategic and interdisciplinary work, dynamic teaming, and flexible funding, we can illuminate a functional cure for patients and their families.
Our Strategy
Research Roadmap
Developed collaboratively with scientific leaders in the community, the single ventricle Research Roadmap is a living ten-year plan toward comprehensive, multidisciplinary, and programmatic solutions to understand and overcome single ventricle heart disease.
Comprised of five significant knowledge and infrastructure gaps slowing down progress in single ventricle research, the roadmap defines crucial research pathways for exploration and investment.
Single Ventricle Scientific Advisory Board
Deepak Srivastava, MD
President, Gladstone Institutes
Professor, University of California, San Francisco
David Rosenthal, MD
Professor, Pediatric Cardiology
Director, Pediatric Heart Failure and Transplantation
Stanford University School of Medicine and Lucile Salter Packard Children’s Hospital
Anthony Philippakis, M.D., Ph.D.
Chief Data Officer, Institute Scientist
Broad Institute of MIT and Harvard
Jane Newburger, MD
Commonwealth Professor of Pediatrics, Harvard Medical School
Associate Cardiologist in Chief for Academic Affairs, Boston Children’s Hospital
Alison Marsden, PhD
Professor of Pediatrics – Cardiology and Bioengineering
Stanford University
Tain-Yen (T-Y) Hsia, MD
Professor of Surgery, University College London
Professor of Surgery, University of Central Florida
Pediatric Cardiac Surgeon, Arnold Palmer Hospital for Children
Anthony B. Firulli, PhD
Endowed Professor of Pediatrics
Indiana University School of Medicine
Rachael Cordina, MD, PhD
Clinical Academic Cardiologist, University of Sydney and Royal Prince Alfred Hospital
Clinical Senior Lecturer, University of Sydney
Christopher K. Breuer, MD
Director of the Center for Regenerative Medicine and Endowed Chair in Surgical Research, Nationwide Children’s Hospital
Director of Tissue Engineering, The Ohio State University
Patient and Family Advisory Board
Tawanna Williams, CPC
Mother to a Post-Heart Transplant Single Ventricle Daughter
Owner/Lead DEI Consultant, Race Equity Solutions
Podcast Creator/Host, Broken Open
Bulent Arman Aksoy, PhD
Father to a Single Ventricle Daughter
Computational Biologist
Taylor Houlihan
Single Ventricle Fontan Patient
3rd Year Medical Student
Jameson Rich
Post-Fontan Single Ventricle, Bi-Ventricular Repair
Writer and Filmmaker
