Biomedical Research
Science has the potential to make extraordinary leaps when the right people, ideas, and technology come together to solve complex problems.
We’re disrupting the traditional research space by re-imagining how science is done and funded, with a focus on supporting both projects and people. Through thoughtful and nimble investments of time and resources into the most pressing scientific questions, we develop tailored solutions and encourage bold, relentless scientific exploration toward our goals.
Single Ventricle Heart Disease
Our biomedical research work focuses on a rare form of congenital heart defects called single ventricle heart disease. While this field is in its infancy, with limited knowledge of cause, risk, outcomes, or treatments, we are confident that through coordinated strategic and interdisciplinary work, dynamic teaming, and flexible funding, we can illuminate a functional cure for patients and their families.
Our Strategy
Research Roadmap
Developed collaboratively with scientific leaders in the community, the single ventricle Research Roadmap is a living ten-year plan toward comprehensive, multidisciplinary, and programmatic solutions to understand and overcome single ventricle heart disease.
Comprised of five significant knowledge and infrastructure gaps slowing down progress in single ventricle research, the roadmap defines crucial research pathways for exploration and investment.
Single Ventricle Scientific Advisory Board
Deepak Srivastava, MD
President, Gladstone Institutes
Professor, University of California, San Francisco
Anthony Philippakis, MD, PhD
Chief Data Officer, Institute Scientist
Broad Institute of MIT and Harvard
Alison Marsden, PhD
Professor of Pediatrics – Cardiology and Bioengineering
Stanford University
Anthony B. Firulli, PhD
Endowed Professor of Pediatrics
Indiana University School of Medicine
Shelley Miyamoto, MD
Jack Cooper Millisor Chair in Pediatric Heart Disease
Professor of Pediatrics
Director, Cardiomyopathy Program
University of Colorado and Children’s Hospital Colorado
Rahul Rathod, MD, MBA
Associate Cardiologist-in-Chief at Boston Children’s Hospital
Associate Professor at Harvard Medical School
Director of the Single Ventricle Program and the Fontan Clinic at Boston Clinic at Boston Children’s Hospital
Patient and Family Advisory Board
Tawanna Williams, CPC
Mother to a Post-Heart Transplant Single Ventricle Daughter
Owner/Lead DEI Consultant, Race Equity Solutions
Podcast Creator/Host, Broken Open
Bulent Arman Aksoy, PhD
Father to a Single Ventricle Daughter
Computational Biologist
Taylor Houlihan
Single Ventricle Fontan Patient
3rd Year Medical Student
Jameson Rich
Post-Fontan Single Ventricle, Bi-Ventricular Repair
Writer and Filmmaker
