Session Description: Shared, strong data infrastructure is critical for advancement in single ventricle science and medicine. In this session, we will discuss existing and emerging data sources for research on single ventricle heart disease, including biospecimen repositories and biological data such as sequencing, genotyping, gene expression, proteomics, metabolomics. Panelists will discuss data sharing, interoperability, and accessibility, as well as emerging possibilities for data integration and analysis.

Panelists:

Ari Cedars, MD, Johns Hopkins University

Bruce Gelb, MD, Icahn School of Medicine at Mount Sinai

Mark Russell, MD, University of Michigan

Martin Tristani-Firouzi, MD, University of Utah

Mingtao Zhao, PhD, Nationwide Children’s Hospital