For Patients and Families
Additional Ventures is a nonprofit working to cure single ventricle heart disease through transformative research and strategic investments that revolutionize treatment and care.
Single ventricle heart disease affects 35 out of every 100,000 newborn children in the US. There’s been huge progress in treating single ventricle over the last 50 years, but to date, there is still no cure.
We’re confident that our grant programs, strategic partnerships across the scientific and clinical community, and innovative approaches to research funding will help us discover the answers needed to cure single ventricle.
Single Ventricle SOURCE
Learn more about our study of single ventricle patients and their families where we aim to understand more about the causes of single ventricle, develop better treatments, and discover cures.
Visit the Study Enrollment Site
Read about our Study Progress.
Our Research Roadmap
Our research roadmap explains Additional Ventures’ approach to single ventricle research by detailing our four scientific priorities: causes, outcomes, care, and cures.
Complex CHD and Family Finances: Info & Resources
In addition to the emotional costs, complex congenital heart defects like single ventricle can be expensive for patients and families. Hear from experts about what resources are available to help.
Resources
- Information about single ventricle heart defects from Boston Children’s Hospital
- Guides and toolkits for single ventricle families from Sisters by Heart
- Adult congenital heart disease clinic directory provided by the Adult Congenital Heart Association
- Summer camps for single ventricle children and teens